MyasthenicKids iMAP Your Finances Triathlon 2011 Registration
Hurstpierpoint College, College Lane, Hurstpierpoint, West Sussex, BN6 9JS
Sunday 20th March 2011
*** iMap is generously match funding every entry fee in donations ***
A group of mums in the Reception class of Ned Bedford whose twin, Charlie, has Myasthenia - Emma, Denise and Michelle - came up with the wonderful idea of the iMAP Your Finances Triathalon at Hurst in order to raise money for what will be the third annual MGA Children's Weekend for families of children with Myasthenia.
Myasthenia is a weird and wonderful neuromuscular disease - weird in that it is incredibly rare and complex, and wonderful in that our kids are all very special people. Perhaps the most important part of the annual Children's Weekend therefore is that it enables the children to meet other children like themselves. It also enables the parents to learn from each other about how best to care for and support children with a complex neuromuscular condition that is on the frontline of research.
We hold workshops about physio and occupational therapy, school needs and benefits advice. And we invite the research teams at Newcastle, Oxford and Great Ormond Street to come and tell us about the latest breakthroughs.
The weekend is a positive and joyous event where everyone is equal and has a common goal - getting the best out of life for children with Myasthenia. This disease can affect people from all walks of life from all four corners of the UK therefore, to ensure equality, we fundraise to provide accommodation, food and, where needed, travel grants.
The video on this page was taken recently and shows 4yr old Toby Jones climbing up the stairs. It is a good example of how difficult life can be for our children. And also just how determined they are!
Entry to the Triathlon requires a fee of £15 for an individual or £35 for a team, however we ask entrants to try and raise a minimum of £100 sponsorship from their race. The race comprises a 200m swim, a 2.5km run and a 10km bicycle ride.
We greatly value your support and we hope you have a great day on 20th March!
If you would like to enter this triathlon please fill in the registration form below.