myasthenickids.org

iMap MyasthenicKids iMAP Your Finances Triathlon 2011 Registration
Hurstpierpoint College, College Lane, Hurstpierpoint, West Sussex, BN6 9JS

Sunday 20th March 2011

*** iMap is generously match funding every entry fee in donations ***

A group of mums in the Reception class of Ned Bedford whose twin, Charlie, has Myasthenia - Emma, Denise and Michelle - came up with the wonderful idea of the iMAP Your Finances Triathalon at Hurst in order to raise money for what will be the third annual MGA Children's Weekend for families of children with Myasthenia.

Myasthenia is a weird and wonderful neuromuscular disease - weird in that it is incredibly rare and complex, and wonderful in that our kids are all very special people. Perhaps the most important part of the annual Children's Weekend therefore is that it enables the children to meet other children like themselves. It also enables the parents to learn from each other about how best to care for and support children with a complex neuromuscular condition that is on the frontline of research.

We hold workshops about physio and occupational therapy, school needs and benefits advice. And we invite the research teams at Newcastle, Oxford and Great Ormond Street to come and tell us about the latest breakthroughs.

The weekend is a positive and joyous event where everyone is equal and has a common goal - getting the best out of life for children with Myasthenia. This disease can affect people from all walks of life from all four corners of the UK therefore, to ensure equality, we fundraise to provide accommodation, food and, where needed, travel grants.

The video on this page was taken recently and shows 4yr old Toby Jones climbing up the stairs. It is a good example of how difficult life can be for our children. And also just how determined they are!

Entry to the Triathlon requires a fee of £15 for an individual or £35 for a team, however we ask entrants to try and raise a minimum of £100 sponsorship from their race. The race comprises a 200m swim, a 2.5km run and a 10km bicycle ride.  

We greatly value your support and we hope you have a great day on 20th March!

If you would like to enter this triathlon please fill in the registration form below.

Title: 
Name: 
Email: 
Postal address: 
Tel: 
Mobile: 
Date of Birth: 
Individual or team entry: 
I confirm that I am over 18 as at 19 March 2011.
I understand that the organisers hope that entrants will raise a minimum of £100 in sponsorship for this great cause.
I understand that my entry fee must be sent by cheque to the race organisers before my place will be confirmed (Cheques to be made out to 'MGA Children’s Branch' and sent to: Nick Bedford, MyasthenicKids, PO Box 2087, Shoreham-By-Sea, West Sussex, BN43 5ZF).
I confirm that I will pay Sponsorship that I raise directly into the MyasthenicKids Triathlon fundraising page on JustGiving within two weeks of the event: http://www.justgiving.com/Helen-Bedford.
I confirm that I have read and understood the Conditions of Entry below.

Conditions of Entry

You certify that you are 18 years of age or older and have read these Conditions and accept the terms and conditions it contains.

You agree and acknowledge that you are aware that a mini Triathlon involves the real risk of serious injury or even death from various causes including exertion, strenuous activity, equipment failure, dehydration, collisions or incidents involving other competitors, spectators, other road users and/or vehicles, aspects of the course or bad weather conditions and other causes. You understand you should not enter or participate in the Event unless you have trained appropriately and had any health concerns checked by a medical practitioner.

You acknowledge that participation in the Event will be physically demanding and you are aware of the nature of the Event and the associated medical and physical risks involved. You accept you are physically capable of competing in the Event and agree that (subject to the Limitation of Liability paragraph below) the race organisers are not responsible for any injury or illness that you may suffer as a result of your participation in the Event.

You agree to abide by all race rules and directions the organisers issue with respect to the Event.

You acknowledge that by reason of circumstance beyond our control, it may become necessary to change the format of the event, and if that occurs, you consent to the changes and you agree that each and every one of the conditions set out herein shall apply to the changed event.

You give permission to our Event staff to make decisions concerning medical care and treatment, and where necessary to authorise such care and treatment in emergency situations.

You further acknowledge and understand that compulsory public liability insurance affected for the Event under the Myasthenia Gravis Association may not cover you for any or all injury, loss or damage sustained by you. You are strongly advised to obtain personal accident and personal items coverage, adequate for the Event.