The first year we held a children's weekend eight families dealing with myasthenia met up to get to know each other and share information. Last year, the 2nd children's weekend, 21 families with 58 children in total - 24 myasthenic - attended the conference and family weekend. This year we are all busy fundraising with the aim of bringing 30 families together.
The third gathering was held in Stoke on the 27/28 August. Another excellent time was had, with the opportunity to listen to medical advice, meet other families affected, and to share stories. the second day was filled with a visit to Alton Towers themes Park, which was fun for all who went. We were so pleased to have even more families join us this time, and hope for an even more eventful weekend in 2012!
Helen has written us an excellent report of the 2011 Weekend, which is avalailable to download here.. it's well worth a look, and has enough incriminating photos to ensure you do need to check you are not in them!
Download the Weekend Report for 2011 here...